Today, my heart is heavy. Earlier this year, my friend Matt, whom I have known since junior high, and his wife Shannon received some heart wrenching news regarding their two children. Their daughter will be 5 soon, and their son will turn 3 right after Christmas. Both children were diagnosed with a terminal disease known as Sanfilippo Syndrome. You can read about their story and learn about the disease here: Matt & Shannon's blog. (Keep the tissues close!)
Some of their college friends set up a website to provide information about the disease and help raise funds for the family. They just moved back to the US after living in London the past year. Matt & Shannon will need to buy a house soon; a great deal of remodeling will likely be necessary as they make it appropriate for the kids and the needs they will have as the disease progresses. There will also be countless medical bills as they seek to provide the best care possible for their precious children. If you feel led to contribute, or would like to learn more please visit A Hundred for a Home.
At minimum, please pray for Matt, Shannon, Waverly and Oliver. I never understood the depth of love a parent feels for a child until Essie came into our lives. And, I can't even begin to understand the pain Matt & Shannon must be feeling in their situation.
I'm going to add a link to Matt & Shannon's blog in our 'great links.' I hope it serves as a reminder for you, and for me, to pray for them often.
Thank you!
PS...Parents, go hug your kids and tell them how much you love them!!
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